10-1-19 Note: I feel decent. I do what I want: garden, golf, hike, play music, and chase the grandkids. I accomplish these activities with varying degrees of fatigue. I have serious neuropathy in my feet that creeps into my lower legs. I have bone pain in my pelvis and right femur. My last MRI showed “abnormal signal intensity” but did not specify cancer progression or the presence of bone lesions. The pain is manageable. So, we wait and watch.
The MM is stable since switching to an oral medication in August of 2018. And, December of this year will mark twelve years since diagnosis.
The current regimen has me taking Darzalex (Daratumumab) once a month, oral Revlimid, three weeks on, one week off, and 12 mg of dexamethasone, once a week. I also receive IVIG once a month and Zometa (a bone strengthener) once every three months.
Blood labs: CBC, Chem Panel, Serum Free Light Chain Assay, and Serum Protein Electrophoresis on day 22 of every 28 day cycle.
Clinic with oncologist once each month to review lab results.
I will update the results from three labs taken monthly:
M-spike, the clearest indicator of cancer activity. (Graph above)
Creatinine, which shows how my kidneys are faring as myeloma can cause kidney problems.
Hemoglobin, for anemia, as it is a symptom common to MM patients and present in me from the get-go.
Date M-spike g/dL Creatinine mg/dL Hemoglobin g/dL
1-2-18 1.9 stablish 0.90 normal 9.3 😦
1-29-18 1.9 🤔 1.00 normal 10.1 low
2-26-18 2.0 😦 .80 normal 9.4 😦
3-26-18 1.9 🤔 .88 normal 10.4 low
4-23-18 1.7 🙂 .89 normal 10.7 low
5-21-18 1.9 🤔 .92 normal 10.0 low
6-18-18 2.1 🤭 .92 normal 10.3 low
9-6-18 2.2 ☹️ .85 normal 8.8 ☹️
12-3-18 1.9 🤔 .93 normal 10.0 low
6-1-19 1.4 better .94 normal 10.8 lowish
9-20-19. 1.7 🤔 1.00 normal 11.9 😊
Aspirin 81mg daily
Acyclovir 400mg twice a day
Magnesium and Zinc, 400mg & 15mg daily
Alpha Lipoic Acid 600mg daily
Calcium + D3, 400mg & 500 IU twice a day
Fish Oil Omega-3, 1000mg twice a day
B6, Folic Acid, B12, 2mg & 800mcg & 1000mcg twice a day