I’ve been off treatment from my cancer, multiple myeloma, since June. I needed a break. I took the risk. I was walking a tight rope, but I felt good. Subsequent blood labs show a steady progression of the cancer markers. I figured that sometime, around right now, I would have to get back on the … More Back on the Juice
“Sometimes, you don’t know where you are going until you get there.” Anonymous In August my wife and I drove to Manzanita on the Oregon coast. We were accompanied by her sister and brother-in-law. Our mutual objective was to escape the inland heat. Each morning we walked Neahkanie Beach. A haiku of fog shrouded Cape … More Just Coasting Along
Multiple myeloma is a chronic incurable disease. When I was diagnosed in 2007, the prognosis was three to five years. Little more than a decade later, due to advances in research, the statistics have improved. Some patients persist upwards of ten years. I fall into that category: one of the lucky ones. Chronic means it … More The University of Cancer, Part 4
I have multiple myeloma, a cancer that affects the plasma cells in my blood. The initial diagnosis occurred in December of 2007. So, it’s been four years and seven months. My first doctor gave me five years to live; the second opinion I received generously offered six years. In retrospect, both those prognoses seem pessimistic. … More Good Books
Recently, I visited family in San Francisco, my hometown. My roots are urban, but 40 years ago, my wings carried me to more rural environs. I was born at Children’s Hospital on California Street in 1946. My parents worked hard providing their five kids with the basics: bikes, baseball mitts, and a safe home. I … More Blue Collar Cancer
Everyday, I think about having cancer and everyday I forget that I have cancer. Reminders of my illness abound. It does not take much to make me hesitate and ponder the calculus of my future. For example, because we live in a remote area, I often shop on the web. Just last week, I procrastinated … More Everyday
Recently, I met with my oncologist, Dr. M. His practice is located in Portland, OR. Each Thursday, however, he travels 60 miles up the Columbia River Gorge to Hood River. Here, he spends the day attending to cancer patients in our small community. He commented that my disease continues to be in “complete remission.” His … More Unremarkable
On one of the myeloma blogs I read, there was an entry titled, “The High Cost of Staying Alive.” The subject was a particular drug commonly prescribed for patients with multiple myeloma, thalidomide. In the article, the writer questioned its exorbitant monthly cost. He alleged that the drug’s manufacturer discriminated against myeloma patients due to … More Our Healthcare, Our Conscience
We just returned from the SCCA’s Long Term Follow-Up Class for transplant patients. The class is a requirement before a patient can be discharged, and we have only more day of appointments to keep here, concluding with tomorrow afternoon’s Exit Conference. We plan to drive back to Hood River on Friday, one day early! John … More Long Term Follow Up Care
Reluctant grazing best describes my diet. Water tastes terrible. I wear a hydration backpack carrying 1500 ml of saline solution. A battery operated pump feeds me 250 ml for each of six hours. This replenishes my body fluids. You would think I could drink eight ounces of water every hour, but well, forget it. To … More Hope In A Time Of Melphalan
Good Blood, Bad Blood 